pulling all-nighters

there is this girl.

there is this cough.

together they through some hellacious all-nighters.

i am always invited. i am the pusher.

sadly since she was about 10 months old, hadley has had cough variant asthma. i don' t know where she got it or why she got it.  what i can tell you is the exact first moment we heard this cough come from hadley's mouth. it was on the airplane on our trip to jamaica (cabin pressurization maybe?). we had no idea at the time it would stick around so long and give her so many problems. it is an absolute thorn in her side. anytime she gets a sickness or experiences distinct changes in temperature, the cva flairs up. she could have a fever, cold, ear infection, whatever. the cough invites itself over and stays for several long days.

i absolutely hate it for her. it isn't just a cough cough here and a cough cough there.  it is a cough cough cough cough cough with some more cough and usually a puke. every other minute is a cough. few breaks in between. i can't help but think how sore her throat and stomach muscles must get during her fits. no one likes to see their kid go through something like this. usually the cough sends us to the hospital for breathing treatments and a steroid. both of which we do at home as well, but if our home treatments can't help, off we go to the e.r.

this was the case for us this past weekend. hadley slept terrible on friday night. saturday morning we took her to the peds office where she was diagnosed with a left ear infection. by saturday night she was hacking up a storm. i tried her nebulizer treatment of albuterol and atrovent, but that didn't put a damper on it. next i gave her a dose of prednisol, a steroid, but still no luck. finally, we packed up for a family trip to the hospital where they did another round of atrovent, though we always hope with each visit they will perform a miracle, which hasn't happened yet.  several long hours later, she welcomed longer stints between coughing fits.

but the steroid. that horrible, side-effect ridden steroid. it comes at a price.

she kicks. she screams. she cries. she scratches. she bites. she screams some more. none of which are her normal behavior. it usually sends me to tears seeing her behave in such manic fits. this steroid also wires hers. sending her (us) to bed finally at 10 or 11pm, waking her continually through the night with insomnia, and her finally rising for the next day between 7 and 8am. not enough sleep for any of us.

we are now on day four of her nebulizer breathing treatments and we see relief. she actually slept several hours straight last night. so hopefully she is on her way to recovery, for at least this round.

though she is such a trooper through it all. i admire her strength and bravery.  she's pretty amazing, if i do say so myself. you'd think so to if you saw her amazing behavior with each doc visit.

i absolutely hate this vicious cycle of asthma that she has to endure.

i wish we had a complete cure for it.

i wish she didn't know how to take medicine herself or hold the nebulizer herself.

all we can do is what we are doing now. and that is everything we can to ease the troubles for hadley.
i will take her to the pediatrician, pulmonologist, er, where ever, as many times as necessary to continually put her in their face as a girl with a chronic issue that we need solutions for. if her daily maintenance isn't maintaining, let's change it up. let's explore options and treatments, and do what we can so hadley doesn't have to struggle and know such discomfort.

so thankful for disney jr, which keeps her 
busy during her nebulizer treatments.

and now for some good news.... hadley is 100% on dairy and doing great.
applause. applause. applause.

hello pizza with cheese!

it is nice to see her enjoy the same snacks as her friends as school. it is nice to be able to eat dinner anywhere we want. it is nice to see her share her sister's milkshake. it's just nice.


a super sweet classic

hadley and i have a new favorite book to read at bedtime.


it isn't your average cinderalla book though. it is a sweet, simple toddler version (i'm talking one word per page kind of simple) with the absolute cutest illustrations. its from les petits fairytales. i'm new to this series but already so in love with it.
you can find it here on amazon.

 now i want to get hadley the other princess books in the series. there are quite a few but i think we'll start here...

super cute, right?


lucky me

happy mother's day to me!

i'm so lucky to be their mommy.


tea for two

got the girls matching dresses yesterday from seed factory. love that store!

no reason for the purchase. they were just simply too cute to pass up.

it's the cape point beach dress from tea

don't have a picture but i also got both girls a fabric knot necklace to go with their dress.
looks a little like these...

next step is to get an actual picture of the girls wearing them! pretty sure it will be super sweet.


wordless wednesday

two days at the carnival

lemonade days.

one of our favorite things about spring.

it is the small carnival that comes through our town yearly and we absolutely love going to.

this year the weekday experience far outweighed our weekend experience. we took the girls on wed night and it was not busy at all. so there were no lines for the rides, games, or food. (we mainly go to the carnival for the food!) that is the way we prefer a carnival... all fun with no lines. we went again on sunday afternoon and what a crazy scene that was. the lines for everything were ridiculously long. for the same amount of money, the girls rode half the amount of rides. i hope to go next year two weekdays and skip the weekend madness all together.

side note- poor hadley tried a funnel cake, which she seemed to enjoy. what's not to love about the powdered sugar. however, the combination of funnel cake and carousel did not agree with her. 10 minutes later when we got home, poor girl threw it all up. lesson learned.

hads on the carousel, which i might add was a little too fast
 lb on said scary, speedy carousel
 italian ices- yummy

 scary kids mini roller coaster (do you see a theme here).
 hads riding next to me on these little race 
cars that just go round and round. pretty sure 
they cause whiplash. all part of the fun, right

muscle girl winning a prize
i think she prefers the games to the rides 

day two:
caroline was sweet to ride this with hadley
as for whatever reason, parents couldn't ride

 lb on the spyder, which goes up and around.
hello dizzy

can't wait for next year already!

and for fun, a quick flashback to last years carnival